Wednesday, December 15, 2010

Feeling a little discouraged

This week has been a good week but a jammed packed week. In so many ways that can be kinda nice because you get a lot done and the week goes by so fast but it also means that when something else is piled on you are already really stretched. That is how I feel a little today. Really stretched. My poor brain is not equipped to hold so much information. But the point of this post is not all that it is that I am having so many issues with Bennett's therapy and I am getting that ticking clock feeling, that so much time is slipping through my fingers because of all these problems I am having. It is so hard not to let that get to you. It makes me really anxious. Here is what is going on and I would love to hear everyone's advice on what I should do next.

So we did all his testing with early intervention and then what should have taken them the next week to assign him a therapist took 3. Then when she called she came out for 2 hours, made me late to pick up Porter and just wanted to double check every single answer of his testing. She apparently wasn't convinced that he needed services. I should point out she did not test him and she did not even met him until the last 15 minutes of that appointment. So I had to leave but she was coming again the next week and she would start work with Bennett. Wrong again. She comes and spends the whole hour going over goals, and she gives me this lecture that maybe he was given the wrong diagnosis. She wasn't saying he wasn't autistic she was saying that she thinks he has aspbergers. Again she has not even worked with him, but she saw him for 15 minutes and somehow that makes her more qualified than a dr. who has studied autism for 30 years. I don't think so. Anyways I politely said that he had the right diagnosis and that really that should not affect his services and I tried to redirect her into beginning the session. Well she never did and to top it off she sat there drilling me and trying to let me know that I don't really know anything about autism. I should point out she is a speech therapists and unfortunately they fit this mold most of the time. Anyways she went over and made me late for Nickelle and still never began therapy. I called Dallin and I told him I was nervous about her because she just wanted to dig at everything I do and find something wrong with it and she still never began services. He reminded me that it is always really crazy in the beginning and that most of our therapists have judged me in the beginning until they have gotten to know me and learn to trust that I know my kids.

Also with all this he is supposed to be starting a class with a small group of kids and they do a play therapy group. He will begin that this week. Anyways she calls me last night and tells me she doesn't want to be Bennett's therapists which of course makes me feel like she doesn't want to work with me. Which honestly I could be completely blind to this but I think I am really easy to work with but who knows. Anyways she tells me someone else will see him and to met her on Thursday so she can introduce me. Then she calls this morning and I find out that Bennett might not be able to get in the class with the kids, which in my opinion is the most important service we could be getting him. She says because she has never worked with him yet they can't recommend it. Then she informs me that she thought that instead of the lady she talked to before about being Bennett's therapists she decided to ask someone else because this other woman lost 4 clients and has lots of time now. Then she tells me to met her at a different time on Thursday and not to bring my other kids so I can met this therapist. Then she informs me that she felt like after speaking with me that Brinley was not getting the right services and has asked that she can be able to come and give her therapy. Frankly this woman is a mess and I am being thrown all over the place and I am still not receiving services and if she comes and see's Brinley then I am not sure if Brinley will get what she needs either.

I am a mess. I am trying so hard to fight for every moment I can get of therapy for Bennett he will only get 4 months before he won't qualify and he already tests to high to qualify for the developmental preschool. Which basically means I have 4 months of therapy and then nothing so this is a big deal, and I don't want to work with just anybody, I want to work with the right person. I need a Wendy!!!! That won't make sense to most of you, but trust me that is what I need. I am great at doing the therapy and finding services and putting it all into place but where I struggle is advocating. I am terrible at fighting back. I feel like I have learned a lot but this is anything but natural to me. So I would love any thoughts on this. I should probably be patient and let things work out, but I feel uneasy right now and I want to feel confident in what we are doing. Anyways that is my rant for the day. You gotta love it. Sorry.

6 comments:

Lilly Ann said...

Hang in there Season. Go with what you feel, but do only what you can do. The Lord will fill in the gaps. love you.

Kersten said...

Season, have you thought of calling the different colleges around the area, like in Salt Lake, and even Provo, look into them, see if any of them has a good program for special education, or therapy or something. If they do it's likely that you may be able to find a "Wendy" at one of the schools. You can try putting an ad through the right depart, and see if you can find someone who could help get Bennett the things he needs. Also what is involved in a play therapy group? I'm not sure what all they do. Is it something that has to be run by a therapist? Maybe if we can learn the things that they do, and teach the children, we could help a few parents who are in the same situation as you get some kids together in a controlled play group.

Anyways, I don't know if any of that is even feasible. I am just throwing it out there. Let me know if there's anything you can do. At the latest I'll be done with school at the end of this week. So if you need help with anything just let me know.

Kersten said...

sorry-I meant department, not depart.

and I meant "Let me know if there's anything I can do." I guess I should have proof-read before posting.

Courtnie said...

Season, I have to say I am so impressed with what you are doing. Think of it as a blessing of getting diagnosed so quickly because maybe this would have taken a long time either way and since you got the diagnosis so quickly, you are actually gaining time to get help with Bennett. Does that make sense? Anyway, I know you have 4 months left until he isn't qualified but hang in there. Send your kids over anytime, especially in a crunch like today, and I will gladly help. You can fight this! You are a great mom and know so much! Hang in there! :)

Nicole Arnold said...

I had no idea that you have three kids in services. I have to tell you though, of many people I have known who have dealt with children with autism I have truly seen how great of a person you are. You truly are fulfilling your duty as a mother and are incredible. The Lord has entrusted you with some special spirits and he knows you can do this! You are given the mother instinct for your children and I know you will find and know what is right for them. Your truly amazing!

Jennie said...

Season, trust yourself!!! You know Bennett better than anybody. Maybe you should suggest interviewing potential therapists and let her know you don't want to her. If she's never spent time with Bennett, she has NO idea.
Call if I can help watching kiddos or whatever else...